There’s No Place Like Home
Photo by pacalinbergmanstein
The space ship from E.T. was designed by original Star Wars concept artist Ralph McQuarrie, who died today at the age of 82.
Many of you have asked, so here’s what’s going on with me.
WHAT HAPPENED BEFORE
- 8/1979: Born. Grew up in CT, built a killer eraser collection, fell in love with computers.
- Left college to start a company. Fell hard. Fled to India for 3 months.
- Started 2nd company. Learned to be an adult. Fell in love with NYC.
- Moved to SF, discovered burritos & some of my fave people on Earth.
- 9/2011: Got diagnosed with Leukemia!
- Cried. Went through 3 cycles of chemo. Hurt. Thought hard about what I want out of life. Grew up a second time.
… After over 100 drives organized by friends, family, and strangers, celebrity call-outs, a bazillion reblogs (7000+!), tweets, and Facebook posts, press, fundraising and international drives organized by tireless friends, and a couple painful false starts, I’ve got a 10/10 matched donor!
You all literally helped save my life. (And the lives of many others.)
WHAT HAPPENS NEXT
Tomorrow, I’ll be admitted to Dana Farber in Boston for 4-5 weeks.
First I’ll get a second Hickman line to allow direct access to my heart (for meds and for nutrients if I’m not able to eat). Over the next week, the docs blast my body with a stiff chemo cocktail to try and eradicate all traces of cancer cells. In the process, the immune system I was born with, and my body’s ability to make blood, are destroyed.
Next Friday, I get my donor’s stem cells by IV. I start on immunosuppressants to prevent my body from rejecting them (I’ll be on them for 12-18 months). For these weeks I’ve no immune system, so I’m severely vulnerable to viruses and bacteria. My hospital room and hallway become my world.
Meanwhile, the stem cells make their way to my bone marrow and, with some luck, start producing platelets, red blood cells, and white blood cells. At this point, my blood type changes to the blood type of my donor. And my blood will now have my donor’s DNA, not my own.
This is science fiction stuff. I can hardly believe it’s even possible, and there’s lots of chances for things to go wrong. It’s frightening.
AFTER THE TRANSPLANT
Recovery to a new state of “normal” takes about a year, but there’s a few storm clouds hovering:
- My immune system is new, like a baby’s. I’m prone to getting sick.
- Just as with any organ transplant, there’s a chance of rejection. Except in this case, it’s my blood that’s the foreign body, and it touches every organ. They call it graft-vs-host-disease and it can cause health issues and organ complications for the rest of my life.
- Successful transplant or not, Leukemia can relapse. Stubborn mofo.
Overall, 75% of AML transplant patients survive year one, 50% make it through year five. My odds are a little better since I’m young.
THE GREAT NEWS
I’ve got a long road ahead. But I’ve got a donor & amazing family & friends. A few months ago I didn’t have many options. Today I have a plan.
I am alive. I start tomorrow. Wish me luck!
Everyday I’m Tumblin’
a little peak of the 2ne1 show we just shot. get ready.
This is genuinely Microsoft’s idea of a “streamlined”, “optimized” UI for Windows Explorer. They were so proud of it they wrote a blog post about it.
The post is a sort of masterpiece of crazy rationalization, but I think my favourite part may be this screenshot:
Here, they proudly overlay the UI with data from their research into how often various commands are used. They use this to show that “the commands that make up 84% of what users do in Explorer are now in one tab”. But the more important thing is that the remaining 50% of the bar is taken up by buttons that nobody will ever use, ever, even according to Microsoft’s own research. And yet somehow they remain smack bang in the middle of the interface. The insanity is further enriched by this graph:
Again, this is Microsoft’s own research, cited in the same post: nobody — almost literally 0% of users — uses the menu bar, and only 10% of users use the command bar. Nearly everybody is using the context menu or hotkeys. So the solution, obviously, is to make both the menu bar and the command bar bigger and more prominent. Right?
Microsoft UI has officially entered the realm of self-parody.